 |
NMDP Launches Patient Resources Web Site
|
 |
|
| |
Submitted By: Patrick Thompson
National Marrow Donor Program Launches Web Site
To Guide Patients, Families Through Transplant Process
MINNEAPOLIS, Minn. 8/24/05 release on CancerNews
– The National Marrow Donor Program® (NMDP) Office of Patient Advocacy has launched a new Patient Resources Web site to provide information and resources to transplant patients and their families.
The Patient Resources site (http://www.marrow.org/PATIENT/) includes information that can help patients and their families:
• Talk with their doctors
• Choose a transplant center
• Understand the role of the caregiver
• Manage financial or insurance matters
• Prepare for life after transplant
• Connect with other organizations that can help
“Dealing with a major illness creates tremendous stress that can affect the whole family,” said Elizabeth Murphy, director, NMDP Office of Patient Advocacy. “The NMDP’s Office of Patient Advocacy is available to help relieve some of that stress. The new Patient Resource Web site is another valuable tool to help connect patients to the information and resources they need.”
The Office of Patient Advocacy is staffed with trained case managers with a variety of backgrounds such as clinical social work, public health and education. They provide one-on-one guidance throughout the transplant process – from diagnosis through survivorship – and in some cases act as direct liaisons, connecting patients to other valuable resources.
Each year thousands of people are diagnosed with life-threatening diseases such as leukemia and other blood disorders. For many of these patients a marrow or cord blood transplant could be their best—or only—hope of a cure. In the best of circumstances, a transplant is a complex and physically demanding procedure.
For patients without a matching donor in their family, the search for an unrelated donor or cord blood unit adds additional stress to the situation. Patients and their families need information, resources and support to help them understand their treatment options and make informed decisions about their care.
All NMDP patient advocacy services and resources are free and also available to patients and families outside of the United States. To speak with someone in the NMDP’s Office of Patient Advocacy, call (888) 999-6743 or (612) 627-8140 outside of the United States or e-mail patientinfo@nmdp.org. Interpreters are available.
About the NMDP
The NMDP has helped more than 20,000 patients throughout the world receive a transplant for life-threatening diseases such as leukemia and aplastic anemia, as well as certain immune system and genetic disorders. Through its U.S. and international Network, the NMDP manages the world's largest and most diverse Registry of more than 5.5 million volunteer donors, including more than 43,000 cord blood units.
The NMDP connects patients, doctors, donors and researchers to the resources they need to help more people live longer and healthier lives. To achieve this mission, the NMDP searches its Registry; supports patients and their doctors throughout the transplant process; and matches patients with the best donor or cord blood unit using innovative science and technology. To learn how you can help make life-saving transplants a reality for patients, call the NMDP at 1-800-MARROW-2. Online information is available at www.marrow.org/patient.
|
|
|
|
Additional Authors: |
|
|
|
|
Works Cited: |
|
|
|
|
Article Links: |
|
|
|
|
|
|
|
|
|
___ ___ ___ ___ ___ ___ ___ ___ ___ ___ ___ ___
___ ___ ___ ___ ___ ___ ___ ___ ___ ___ ___ ___
___ ___ ___ ___ ___ ___ ___ ___ ___ ___ ___ ___
|
|
|
|
|
These review articles are the opinions of the authors. Some of the views may be controversial.
CancerNews.com™ does not directly endorse the work. We merely present it as part of our service.
Please read the disclaimer.
|
|
|
|
|
|
|
|
|
|
Team5 Corporation located in Manhattan (New York) is a Web Development company specializing in
large scale database driven web sites.
{www.team5.com}
|
|
|
|
|
Search for great prices on apparel, electronics, sporting goods and more.
Buy online and save.
{www.shoppingnews.com}
|
|
|
|
